<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0" xmlns:itunes="http://www.itunes.com/dtds/podcast-1.0.dtd" xmlns:googleplay="http://www.google.com/schemas/play-podcasts/1.0"><channel><title><![CDATA[The Scoliosis Blog]]></title><description><![CDATA[Real Life with Idiopathic Scoliosis]]></description><link>https://thescoliosisblog.substack.com</link><image><url>https://substackcdn.com/image/fetch/$s_!U-vg!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8e829887-ea89-4596-a0c1-87cbf31c5105_1080x1080.png</url><title>The Scoliosis Blog</title><link>https://thescoliosisblog.substack.com</link></image><generator>Substack</generator><lastBuildDate>Wed, 26 Aug 2026 04:00:26 GMT</lastBuildDate><atom:link href="https://thescoliosisblog.substack.com/feed" rel="self" type="application/rss+xml"/><copyright><![CDATA[Caroline Bell]]></copyright><language><![CDATA[en]]></language><webMaster><![CDATA[thescoliosisblog@substack.com]]></webMaster><itunes:owner><itunes:email><![CDATA[thescoliosisblog@substack.com]]></itunes:email><itunes:name><![CDATA[Caroline Bell]]></itunes:name></itunes:owner><itunes:author><![CDATA[Caroline Bell]]></itunes:author><googleplay:owner><![CDATA[thescoliosisblog@substack.com]]></googleplay:owner><googleplay:email><![CDATA[thescoliosisblog@substack.com]]></googleplay:email><googleplay:author><![CDATA[Caroline Bell]]></googleplay:author><itunes:block><![CDATA[Yes]]></itunes:block><item><title><![CDATA[Obvious “Scoliosis Things” That Have Never Been Made Obvious]]></title><description><![CDATA[It&#8217;s time everybody knew...]]></description><link>https://thescoliosisblog.substack.com/p/obvious-scoliosis-things-that-have</link><guid isPermaLink="false">https://thescoliosisblog.substack.com/p/obvious-scoliosis-things-that-have</guid><dc:creator><![CDATA[Caroline Bell]]></dc:creator><pubDate>Tue, 25 Aug 2026 02:40:34 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!U-vg!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8e829887-ea89-4596-a0c1-87cbf31c5105_1080x1080.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>If you have recently found the thriving Scoliosis Community online, you may very well have had a few &#8220;Ah-ha!&#8221; moments. Little inklings coming together from various sources that have begun to form a realization that you are not, in fact, all alone in your scoliosis journey. Even better: that it&#8217;s truly not &#8220;just you&#8221; that have had odd little moments courtesy of your curvy and/or fused spine - we all have those moments!!</p><p>If you are brand new to the scoliosis journey: welcome. Here&#8217;s hoping some of these below instances will expedite your realization that there are tons of other people out there who live similar spine-full lives. </p><p>And if you&#8217;re somebody from the general non-scoliosis-living public reading this, then THANK YOU for your interest in learning about real life with scoliosis. Here&#8217;s hoping you have some fascinating &#8220;Ah-ha&#8221; moments of your own to share with the world about scoliosis to help us out.</p><p>As always, keeping this short and tidy, let&#8217;s get right into a meaty list of <strong>&#8220;Obvious scoliosis things that have never been shouted from the rooftops as actually being obvious scoliosis things and instead have left millions over centuries feeling like they&#8217;re alone and different and abnormally pained but that&#8217;s nonsense because so many of us experience these things daily so let&#8217;s put it out there and talk about it&#8221;</strong><em>(*working title)</em>.</p><p>Real Life with Scoliosis may include:</p><ol><li><p>Standing too long is uncomfortable. </p></li><li><p>Sitting too long is uncomfortable. </p></li><li><p>Following your dreams.</p></li><li><p>Adjusting your goals. </p></li><li><p>Having days where you forget you have scoliosis/fusion. </p></li><li><p>Having days where all you think about is your scoliosis/fusion.</p></li><li><p>Running a marathon. </p></li><li><p>Not being able to walk up stairs without crying today. </p></li><li><p>Feeling like nobody understands your fears and pains. </p></li><li><p>Being made to feel teeny tiny because some medical professional dismisses your pain level/fear/concern/grief.</p></li><li><p>Wishing it would just go away. </p></li><li><p>Wishing there was a magic cure. </p></li><li><p>Wishing your spine never curved. </p></li><li><p>Wondering why this had to happen to you. </p></li><li><p>Hiding your spine/brace/fusion scar.</p></li><li><p>Showing off your spine/brace/fusion scar.</p></li><li><p>Not knowing how to explain what scoliosis/fusion is to a new person in your life for the first time. </p></li><li><p>Learning to be your own specialized personal bodybuilder.</p></li><li><p>Feeling nauseous in hospitals courtesy of childhood time spent traumatized there. </p></li><li><p>Wanting to talk about your scoliosis/brace/fusion experience but have no clue whatsoever where to begin or how to find the words. </p></li></ol><p>Any of the above items resonate with you?</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://www.amazon.com/Tangled-Curves-Real-Idiopathic-Scoliosis/dp/1039174701/&quot;,&quot;text&quot;:&quot;Even more items in these pages!&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://www.amazon.com/Tangled-Curves-Real-Idiopathic-Scoliosis/dp/1039174701/"><span>Even more items in these pages!</span></a></p><p>Twenty items in, and yet we could go on for another 200. THAT is <em>Real Life with Idiopathic Scoliosis. </em>There is so so so so much more to this condition that has never been unpacked publicly; that has never been properly showcased in books, movies, media; that has been packed up in the deepest recesses of patients&#8217; minds as they endure some pretty gnarly medical trauma without sufficient supports in place. </p><p>And unfortunately, THAT is also<em> Real Life with Idiopathic Scoliosis.</em></p><p>We are changing this narrative. </p><p><em>Like what you read? Feeling seen FINALLY? That is who Tangled in the Curves: Real Life with Idiopathic Scoliosis </em>was written for : for you. </p><p>Far more than these 20 points await you in its pages. Get your copy today and let&#8217;s continue this conversation. </p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://www.amazon.com/Tangled-Curves-Real-Idiopathic-Scoliosis/dp/1039174701/&quot;,&quot;text&quot;:&quot;Get your copy today!&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://www.amazon.com/Tangled-Curves-Real-Idiopathic-Scoliosis/dp/1039174701/"><span>Get your copy today!</span></a></p><p><code>Note: This blog is based on the author&#8217;s experience and opinion only, without any formal medical training. In no way should this blog replace professional medical advice.</code></p>]]></content:encoded></item><item><title><![CDATA[The Scoliosis Playlist]]></title><description><![CDATA[How Music Helped Me Through Scoliosis]]></description><link>https://thescoliosisblog.substack.com/p/the-scoliosis-playlist</link><guid isPermaLink="false">https://thescoliosisblog.substack.com/p/the-scoliosis-playlist</guid><dc:creator><![CDATA[Caroline Bell]]></dc:creator><pubDate>Thu, 09 Jul 2026 01:14:13 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!U-vg!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8e829887-ea89-4596-a0c1-87cbf31c5105_1080x1080.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>I am not a musician. Always wanted to be&#8230; but those cards were not in my deck. </p><p>However, I have always loved immersing myself in wide-ranging musical styles. Getting lost in a new jam or singing along to a song that just <em>fits</em> the mood&#8230; it&#8217;s pure magic. </p><p>While my enjoyment of music as a young child was purely for funsies, it took quite a new meaning in the years following a life-altering scoliosis diagnosis. Gradually, I sought new music, new artists, new perspectives, new sounds. Anything was on the table to spin at least once. Didn&#8217;t like it? Next. Friends&#8217; CD collections, uncles&#8217; dusty records, the library&#8217;s stacks, the internet&#8230; <em>any</em> source of music had my attention.</p><p>Reconciling the <em>million </em>feelings of processing a medical diagnosis is not an easy task. <em>Especially </em>if you are provided with zero alternative guidance. Music gave me more guidance than I ever realized: I realized that other peoples&#8217; lyrics (we love words here!) spoke about their own challenges and triumphs. Given there are a <em>million</em> styles, artists, and lyrics out there&#8230; I began finding those that matched what I felt or what I needed to hear. I built up a library of &#8220;audio art&#8221; that I could pull from at any time. And believe me, did I need to draw from that collection regularly. </p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://thescoliosisblog.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://thescoliosisblog.substack.com/subscribe?"><span>Subscribe now</span></a></p><p>&#8220;Weren&#8217;t you just disappearing into music and avoiding the problem?&#8221; NO. </p><p>I was immersing myself in something that actually <em>felt </em>like it understood me. That matched the undercurrents of the inner turmoil that comes with a spine deciding to change shape and direction within your core, with nothing you can about it but bracing to compliance.</p><p>I was not avoiding the problem by closing my door, popping in the ole headphones, and not wanting to do anything other than <em>feeling</em> music. Not being anti-social, not being dramatic&#8230; just feeling the feels through a chosen form of art. Sometimes those feelings called for some dance moves - and why not? Dancing is therapeutic as well, motion is lotion, and yes I had probably been sitting for too long already. While I can&#8217;t call it a &#8220;community&#8221; as I never ever met those artists in real life, I do consider this all a key part of my <em>Scoli Support System</em> through this saga. Thank you, musicians and lyricists far and wide. </p><p>Music was also an immense part of my healing process after spinal fusion surgery. Post-op recovery for this one is painful and difficult. Encouraging words and happy tunes were welcome here. During this chapter, I didn&#8217;t have much energy to find any new tunes, but I made sure to load up with new music and familiar faves <em>before</em> the surgery. Some good friends also sent new music and playlists. (Forever grateful to you!)</p><p>Once the turmoil of diagnosis, the frustration of bracing, the recovery of surgery (and all of the teenagerhood along with it) passed, music remained by my side. Ever-ready to help me out in a pinch, those songs that got me through those days still get called to bat on some days. And we love them for it. Having been through so much together, it&#8217;s like peering back into those days but as an adult - giving a hug to your inner child while that same tune gives you the ever-dependable hug too. Magic. </p><p>New songs come out every week. There&#8217;s so much to discover! We as a scoliosis community have begun sharing our most spine-friendly, uplifting, strong, dance-y songs&#8230; so you <em>know</em> these tried-and-true jams needed their own playlist to support <em>every</em> scoli during tough days and fun days. In the true spirit of <em>Tangled in the Curves</em>, we are collecting <em>everything</em> we collectively know about scoliosis and <em>sharing</em> it to make this journey easier for all of us - past, present, and future.</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://open.spotify.com/playlist/6UBuRxCo8JnoBVXcm0QAao?si=aab703e1dadc4f1e&quot;,&quot;text&quot;:&quot;The Scoliosis Playlist&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://open.spotify.com/playlist/6UBuRxCo8JnoBVXcm0QAao?si=aab703e1dadc4f1e"><span>The Scoliosis Playlist</span></a></p><p>Without a doubt, I never would have discovered so many artists had it not been for scoliosis. I had this medical quest to go on, and it needed a soundtrack. So thanks for that, I guess, scoliosis.</p><p>Other Scoli&#8217;s have taken their love of music into the recovery ward in a different way - they saw the benefits of music so deeply, that they studied to become music therapists! Never even knew that was an option when picking out my career&#8230; the more you know!</p><p>Have more songs to add to The Scoliosis Playlist? Please share! The Playlist is forever growing, and we LOVE that. Use the Contact form on our <a href="https://www.tangledinthecurves.com/media-and-contact">website</a>, or dm @ thescoliosisbook on Instagram.</p><p>PS: You better believe that the <em>entire</em> writing process of <em>Tangled in the Curves: Real Life with Idiopathic Scoliosis</em> was fueled by music.  </p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://www.tangledinthecurves.com/buy-tangled-in-the-curves&quot;,&quot;text&quot;:&quot;Get the Scoliosis Book&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://www.tangledinthecurves.com/buy-tangled-in-the-curves"><span>Get the Scoliosis Book</span></a></p><p><code>Note: This blog is based on the author&#8217;s experience and opinion only, without any formal medical training. In no way should this blog replace professional medical advice.</code></p>]]></content:encoded></item><item><title><![CDATA[The Scoliosis Book Club]]></title><description><![CDATA[It's time to read.]]></description><link>https://thescoliosisblog.substack.com/p/the-scoliosis-book-club</link><guid isPermaLink="false">https://thescoliosisblog.substack.com/p/the-scoliosis-book-club</guid><dc:creator><![CDATA[Caroline Bell]]></dc:creator><pubDate>Mon, 22 Jun 2026 15:35:07 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!U-vg!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8e829887-ea89-4596-a0c1-87cbf31c5105_1080x1080.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Insightful, informative, easy-to-read, (dare I say) fun books about scoliosis are missing.</p><p>Where are they?!</p><p>It would appear they&#8217;re still sitting in our hearts and minds.</p><p>The number of people who have gone through any degree of the scoliosis saga and have told me, &#8220;I&#8217;m going to write a book about my journey.&#8221; or &#8220;I have an idea for a novel about a scoliosis warrior - I&#8217;m going to write it finally&#8221; and have yet to do so&#8230;</p><p>I get it. TRUST ME, do I ever get it. Having written the first ever behind-the-scenes scoliosis book with info, insight, plain-language, and (yes)  fun&#8230; I know the amount of time and effort that goes into it. It most certainly is a commitment that costs money. All of those add up to quite a hurdle to writing and publishing.</p><p>But maybe WE don&#8217;t have to write a bunch of books about scoliosis (although you know I will most certainly support your endeavor should you choose to do this!). Maybe non-scoli authors should write relatable characters facing invisible dynamic disabilities into their books too. Main character energy is a crowd fave, but supporting characters too!</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://thescoliosisblog.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://thescoliosisblog.substack.com/subscribe?"><span>Subscribe now</span></a></p><p>Representation matters. We all know that now and request it constantly. In recognition of this, I wanted to create a list of books that support people with scoliosis by <em>representing</em> invisible, dynamic, and spine conditions. These stories of overcoming steep medical hurdles and emotional hurdles AND tackling day-to-day challenges, PLUS whatever plot the characters have to navigate in a novel EQUAL an additional type of support. One where we can escape our world to find a parallel universe where the characters are relatable from the medical lens as well.</p><p>Much like our now-famous Scoliosis Watch List for movies, together we will compile  list of books in The Scoliosis Book Club. Any books that showcase the trials and triumphs of living with a chronic, invisible, dynamic, spinal condition earn a place in this club.</p><p>Check it out on Story Graph today using the tag <em><a href="https://app.thestorygraph.com/tags/50121cad-ceb8-4cbc-b590-230658f77263?redirect=true">the-scoliosis-bookclub</a> </em>accessible on <em><a href="https://app.thestorygraph.com/profile/tangledinthecurves">Tangled in The Curves&#8217; </a></em><a href="https://app.thestorygraph.com/profile/tangledinthecurves">profile</a>.</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://app.thestorygraph.com/tags/50121cad-ceb8-4cbc-b590-230658f77263&quot;,&quot;text&quot;:&quot;Go to The Scoliosis Club's List&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://app.thestorygraph.com/tags/50121cad-ceb8-4cbc-b590-230658f77263"><span>Go to The Scoliosis Club's List</span></a></p><p>A forum has been started for Book Club discussion.</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://app.thestorygraph.com/book_clubs/5c752a29-ec40-42ea-8c4b-b887e99e1396&quot;,&quot;text&quot;:&quot;Go to Forum&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://app.thestorygraph.com/book_clubs/5c752a29-ec40-42ea-8c4b-b887e99e1396"><span>Go to Forum</span></a></p><p>Can&#8217;t wait to discover new books from our Scoli community, and see where these discussions take us!</p><p><code>Note: This blog is based on the author&#8217;s experience and opinion only, without any formal medical training. In no way should this blog replace professional medical advice.</code></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://www.tangledinthecurves.com/buy-tangled-in-the-curves&quot;,&quot;text&quot;:&quot;Your Fave Scoliosis Book is Here&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://www.tangledinthecurves.com/buy-tangled-in-the-curves"><span>Your Fave Scoliosis Book is Here</span></a></p>]]></content:encoded></item><item><title><![CDATA[The Scoliosis Watch List]]></title><description><![CDATA[Good or bad, we want to find them ALL]]></description><link>https://thescoliosisblog.substack.com/p/the-scoliosis-watch-list</link><guid isPermaLink="false">https://thescoliosisblog.substack.com/p/the-scoliosis-watch-list</guid><dc:creator><![CDATA[Caroline Bell]]></dc:creator><pubDate>Fri, 12 Jun 2026 15:02:43 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!U-vg!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8e829887-ea89-4596-a0c1-87cbf31c5105_1080x1080.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Scoliosis in the media&#8230; Where to even begin&#8230;</p><p>Rather than dive into this with the appropriate heartbreak, rage, and disappointment that all of us with scoliosis constantly endure when experiencing the fleeting mention of scoliosis mentioned in the media&#8230; Why don&#8217;t we start at the beginning (while forgiving that glorious run-on sentence).</p><h4><strong>The Beginning:</strong></h4><p>Sadly - and perhaps rather expectantly if you&#8217;re been around the scoliosis space for awhile - scoliosis has never been represented in a resoundingly positive light in the media. </p><p>&#8205;&#8221;Why is that!?&#8221;, you might ask. In the spirit of this short-form blog, we simply do not have the character limit to unpack that. So we will move on as quickly as we started.</p><h4><strong>The Middle:</strong></h4><p>Without laying this out in time brackets per decade - I am an author of experience, not a professional historian - let&#8217;s call &#8216;The Middle&#8221; anything within the past 50 years. Cool? Cool.</p><p><strong>Scoliosis has often been used in comedy as a verbal short-hand. Something quick and presumably &#8216;witty&#8217; to diminish a person&#8217;s strength, appeal, or value</strong>. Characters with scoliosis are not in &#8216;the cool crowd&#8217;. They are not the athletes. They are the targets of the bullies and the jokes. Here are two big reasons what that is not okay.</p><p>[Side note: I could probably write a <em>thousand </em>reasons on this particular matter but, again, &#8220;short-form blog&#8221;.]</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://thescoliosisblog.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://thescoliosisblog.substack.com/subscribe?"><span>Subscribe now</span></a></p><p>Not Okay #1: Compounding the Negative Public View of Scoliosis</p><p>Imagine if movies and tv shows were to constantly make fun of - for the sake of an example here - tall people. That every mention of height was used to belittle. That anybody over 6 feet tall received nicknames that made them uncomfortable, and that despite that discomfort their peers persisted in verbally belittling them. Being tall, something you have no control over, was to be something to be ashamed of. Somehow a physical part of your being that is so unique and beautiful and a visible part of you is to be hidden due to peer mockery encouraged by media mention. </p><p>Making fun of scoliosis in movies and tv shows somehow makes it &#8216;okay&#8217; for the average peer to continue to make fun of it. Some sociology expert is welcome to weigh in as to the scientific &#8216;why&#8217; of this phenomenon, but this I do know for sure: <em>every </em>negative mention of scoliosis in the media is one more strike against bringing light to this condition to make it easier for kids (and adults!) with scoliosis worldwide. I dream of the day the movies stop using &#8216;she has scoliosis&#8217; as a verbal put-down because then maybe - just maybe - the people on the other side of the screen will stop that nonsense as well.</p><p>Not Okay #2: Compounding the Lack/Misinformation of the Scoliosis Condition </p><p>&#8220;Not Okay #2&#8221; goes completely hand-in-hand with &#8220;Not Okay #1&#8221;.</p><p>For every scoliosis <em>insult </em>written into scripts, that right there is a <em>missed opportunity </em>for factual scoliosis information. </p><p>If everybody is hearing &amp; seeing scoliosis being used as a weak/negative/laughable condition, then they&#8217;re certainly not pausing to think about what living with scoliosis <em>truly</em> means! These are missed opportunities that break my heart every time. In my opening paragraph here I mentioned the emotional rollercoaster we feel when there is even the most fleeting of mention of scoliosis on tv: <strong>hope </strong>at the word &#8220;scoliosis&#8221; actually used &gt; hear that the information is negative or plain <strong>wrong </strong>&gt; <strong>heartbreak </strong>that yet another opportunity for an ounce of proper scoliosis information fed to the masses was missed &gt; <strong>rage </strong>that the writers think it&#8217;s funny/okay &gt; a flitter of <strong>sadness </strong>that maybe what they&#8217;re making fun of is true and that I am indeed &#8216;lesser&#8217; because of my curved spine (Ignore them! You are awesome!!) &gt;  <strong>disappointment </strong>that it&#8217;s 2026 and serious medical conditions that turn lives upside down are somehow still permitted into writers rooms as joke material.</p><h4>The Now:</h4><p>That rollercoaster of emotions has caught us all off-guard more than once now. And I think I speak for the scoliosis masses when I say: <strong>ENOUGH</strong>.</p><p>So let&#8217;s work on changing that uncalled-for rollercoaster of emotions, and the narrative of scoliosis in film and tv. It will take all of us working together, from all parts of the globe.</p><p>To know where we need to go, we must first know where we stand. <strong>I give you, the final NEW step in this &#8216;The Fleeting Scoliosis Mentions on TV&#8217;: &gt; take note of it and write it down in </strong><em><strong>one </strong></em><strong>list so we can document who/what/where/when/why/how scoliosis was mentioned in media. </strong></p><p>Who is writing these &#8216;un-witty quips? What genre of tv/movie?  What countries have more/less scoliosis content? What is being said about scoliosis? </p><p>Together we will build a list of all mentions of &#8220;Scoliosis&#8221; in moves and tv. We will be able to see just how much the scale leans between positive/informative mentions vs. negative/false mentions. And then we will work to tip that scale.</p><p><em>Tangled in the Curves</em> has taken the initiative to build the base for this list: <strong><a href="https://www.imdb.com/list/ls4172870582/?ref_=ext_shr_lnk">The Scoliosis Watch List is now Live and publicly viewable on IMDB. </a></strong></p><p>Whenever you find another mention of scoliosis in the media, add it to the list! Use the contact form on the <em>Events &amp; Contact</em> tab up top at <a href="https://thescoliosisblog.substack.com/media-and-contact">tangledinthecurves.com</a>, or dm on Instagram <em>@thescoliosisbook</em> or Facebook <em>Tangled in the Curves</em>.</p><p><strong>Don&#8217;t be shy! We are building this awareness and community together. </strong>I certainly cannot watch every movie and tv episode in the world all by myself! And who knows, maybe you&#8217;ll find some new movies and friends along the way! Together, we can build up  repository of all mentions of scoliosis - good and bad - in media, with the intention of working towards tipping the scale in favor of the GOOD in the future.</p><p>Looking for more scoliosis info, insight, community, and (hot take) authenticity? Get your long-form scoliosis support in paper form: <a href="https://thescoliosisblog.substack.com/buy-tangled-in-the-curves">Tangled in the Curves</a> was written for you. </p><p><code>Note: This blog is based on the author&#8217;s experience and opinion only, without any formal medical training. In no way should this blog replace professional medical advice.</code></p>]]></content:encoded></item><item><title><![CDATA[How to Increase Scoliosis Awareness in Your Community]]></title><description><![CDATA[Easy ways that can make a BIG scoliosis splash]]></description><link>https://thescoliosisblog.substack.com/p/how-to-increase-scoliosis-awareness</link><guid isPermaLink="false">https://thescoliosisblog.substack.com/p/how-to-increase-scoliosis-awareness</guid><dc:creator><![CDATA[Caroline Bell]]></dc:creator><pubDate>Sat, 06 Jun 2026 21:34:20 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!U-vg!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8e829887-ea89-4596-a0c1-87cbf31c5105_1080x1080.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>IT&#8217;S JUNE! (At least, it is June at the time of writing this post&#8230;)</p><p>June is Scoliosis Awareness Month. But Scoliosis Awareness can happen year-round!</p><p>In fact, given that scoliosis awareness has historically be <em>so critically low</em> (*sob*) perhaps scoliosis <em>should</em> have an entire dedicated year of awareness to give it a chance to catch up!</p><p>Awareness - for anything - doesn&#8217;t just <em>happen</em>. It takes time, effort, and oftentimes money. Critically, it takes <strong>devotion and a chorus of voices to push it forward.</strong></p><p>This author sees awareness for scoliosis as having three branches:</p><ol><li><p>Social Awareness</p></li><li><p>Research Efforts</p></li><li><p>Emotional Supports</p></li></ol><h4><strong>Social Awareness</strong></h4><p>Let&#8217;s be honest: scoliosis has <em>not</em> had a fun time in media and society over the last few <em>centuries</em>. It has gotten a bad rap. Been used as a short-hand to belittle or indicate weakness. The &#8216;Hunchback of Notre Dame&#8221; hid in a tower because his society was so cruel. Are you kidding me?! How on earth can we expect that tide to change without a concerted effort to change that narrative.</p><p>Now is the time.</p><p>Scoliosis is <em>not</em> a weakness or something to be shamed for. It is <em>not</em> a comedic tool to be tossed around in tv and movies to snip at somebody&#8217;s posture or form. No, no, no.</p><p>How do we change this?</p><ul><li><p>We re-route the narrative when we see/hear such things.</p></li><li><p>We educate anybody and everybody who will listen as to what scoliosis <em>truly</em> is, and not what media/society has planted in minds for generations.</p></li><li><p>We speak at health and wellness events, libraries, schools, book clubs, wine clubs, business clubs&#8230; any platform within the community is an opportunity for scoliosis awareness!</p></li></ul><p><strong>BONUS</strong>: When you do speak about scoliosis in your community, I promise you will be <em>shocked</em> at the number of people who come up afterwards to tell you &#8220;My [insert friend/family/coworker here] has scoliosis and I never knew any of that!&#8221; or my personal fave &#8220;I have scoliosis too and I have never known anybody else who has it!&#8221; If you can&#8217;t connect with other scoli humans, check out your paperback scoliosis best friend: <a href="https://books.friesenpress.com/store/title/119734000334031859/Caroline-Bell-Tangled-in-the-Curves">Tangled in the Curves</a>.</p><p>**Cue warm and fuzzy feeling of making a positive difference in your community <em>and</em> for the next generation of Scoli&#8217;s. Great job!</p><h4><strong>Research Efforts</strong></h4><p>Modern day medical marvels astound me constantly. While I do not work in a lab, I have had the privilege of meeting many researchers toiling away &#8216;behind the scenes&#8217; to understand the source of scoliosis. (Yes, that works is happening, even if it&#8217;s not constantly in the headlines!) I have also had opportunities to meet with varying clinicians, therapists, and surgeons from around the world working on new techniques to expedite scoliosis correction and healing (both physical and mental). There is so so so much on the go that it warrants its own rant, so I&#8217;ll stop myself here (for now).</p><p>Scoliosis Awareness ties so closely to the research world. Research takes time and effort from brilliant scientists. Scientists need to eat too and lab equipment isn&#8217;t cheap. Therefore, fundraising for scoliosis is a direct line to building that insight and information for our beloved collection of Scoliosis Warriors around the world - past &amp; present &amp; future!</p><p>Research institutions vary by region/country. Find one in your corner of the world and consider fundraising for them! June is a great month to do so - Scoliosis Awareness month gives you a great platform to launch a fundraiser, accompanied by all of the other Scoliosis Warriors posting awareness online daily!</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://thescoliosisblog.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://thescoliosisblog.substack.com/subscribe?"><span>Subscribe now</span></a></p><p></p><h4><strong>Emotional Supports</strong></h4><p>This branch of scoliosis awareness ties the first two together: changing the social narrative of scoliosis makes it easier on the Scoli + increased research efforts into every field provides hope and new solutions for scoliosis woes. While those two branches are gaining momentum, we can simultaneously boost scoliosis awareness with emotional support in our day-to-day interactions.</p><p>For anybody impacted by scoliosis - whether yourself or a loved one - we all have a fantastic ability to <em>learn</em>. We don&#8217;t necessarily have to be hanging out with the petri dishes in labs every day to contribute to improving the care of our loved ones with scoliosis (yourself included). Learning about scoliosis -its physical impacts, emotional ups and downs, the nature of a dynamic condition, the loss experienced at the time of diagnosis, the concern for the future - can inform so much of the saga. Having an inkling of an understanding into those realms impacted by a curvy spine will provide the foundation for improved emotional support. For yourself: acknowledging what scoliosis means to you. For a Scoli Supporter: seeing through the lens of life with a curvy spine.</p><p>Take a look around your community - within your home, parish, county, State/Province, Country. What impact has scoliosis had on your life? What is your level of comfort with stating the stats and strengths of people with scoliosis? Do you have a particular interest in a specific aspect of the scoliosis saga? What is the realistic amount of time you have to lend to Scoliosis Awareness? Do you want to be in the spotlight, or contributing behind-the-scenes in coordinating scoliosis awareness?</p><p>While some of us want to shout Scoli Awareness from the rooftops, that&#8217;s not necessary for everybody! Scoliosis Awareness can be as little as dropping it into conversation here and there, when it makes sense - all small ripples add up!!</p><p>I&#8217;ll leave you with <strong>this tiniest opportunity to kickstart Scoli Awareness: June is Scoliosis Awareness Month</strong>. For reasons that continue to elude me (AKA: there&#8217;s no logic to it and we can <em>so </em>fix this!!) Scoliosis Awareness Month if left off of ALL of the &#8220;awareness month&#8221; calendars! Mental Health Awareness Month, MS Month, <em>thisthatanother </em>Month&#8230; but never Scoliosis Awareness Month! This makes me (and many others) very very sad, as it is established and recognized globally - yet it is never put &#8220;on the books&#8221;.</p><p>Let&#8217;s put Scoliosis Awareness Month on the books for June. Reach out to your workplace, parish, community calendar - literally anybody that tracks special &#8220;Months&#8221;, let them know about Scoliosis for June, and request that they include it on the newsletter/calendar. Simply having it written there will <strong>pop </strong>it in front of so many people and plant the seed for Scoliosis Awareness in their minds. I don&#8217;t recommend things I haven&#8217;t tried - so I did this at my workplace last week when I say an internal comms email come through listing all <em>thisthatanother</em> month celebrations for the quarter without Scoliosis Awareness Month! How dare. One quick email to that department containing two sentences and BOOM the next internal comms email showed a shiny new line item under June: Scoliosis Awareness Month. I am very proud of this tiny mighty win - and you can be too!</p><p>Thank you for joining us all in pushing Scoliosis Awareness. All of our curves thank you.</p><div class="callout-block" data-callout="true"><p><strong>BONUS</strong>: Send a copy of <em><a href="https://books.friesenpress.com/store/title/119734000334031859/Caroline-Bell-Tangled-in-the-Curves">Tangled in the Curves: Real Life with Idiopathic Scoliosis</a> </em>to your local hospital to provide Scoliosis Awareness year-round right in their pediatric waiting room!</p></div><p><code>Note: This blog is based on the author&#8217;s experience and opinion only, without any formal medical training. In no way should this blog replace professional medical advice.</code></p>]]></content:encoded></item><item><title><![CDATA[5 Scoliosis Questions You Need to Get Answers to ASAP]]></title><description><![CDATA[Know your own scoli basics!]]></description><link>https://thescoliosisblog.substack.com/p/5-scoliosis-questions-you-need-to</link><guid isPermaLink="false">https://thescoliosisblog.substack.com/p/5-scoliosis-questions-you-need-to</guid><dc:creator><![CDATA[Caroline Bell]]></dc:creator><pubDate>Wed, 03 Jun 2026 23:22:14 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!U-vg!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8e829887-ea89-4596-a0c1-87cbf31c5105_1080x1080.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Newly diagnosed with scoliosis? Child recently diagnosed with scoliosis? Fully grown adult who was told not to worry about your small curvy spine as a teenager and now three decades later are looking for answers? Fused ages ago as a teen and now needing to address your scoliosis again?</p><p>Here are the top 5 things you need to get answers about to support <strong>your own scoliosis:</strong></p><p><strong>Question 1: Where are the curves in my spine?</strong></p><p>One curve? Two? Maybe three?</p><p>Are they up top? Middle? Bottom? (AKA: Cervical, Thoracic, Lumbar, respectively)</p><p>Do they go left or right or both?</p><p>Knowing where your curve(s) are is critical to everything that follows. That&#8217;s the start of your personal Scoliosis 101.</p><p><strong>Question 2: What degrees are my curves?</strong></p><p>Scoliosis curves are measured by Cobb angles (calculated by doctors using your X-rays). The bigger the number, the bigger the curve. If you have more than one curve in your spine, each one will have its own Cobb angle. Know them so they can be monitored for changes.</p><p><strong>Question 3: Where are my concavities and convexities?</strong></p><p>Wait, what do those words even mean?!</p><p>A concavity is a dent. Think of it as having the word &#8220;cave&#8221;; an inset.</p><p>A convexity is the opposite! Something that balloons outwards, for example.</p><p>With scoliosis, the spine does not simply curve - it also bends and rotates. All these forces at play means that other body parts are impacted. Most have one side of their ribcage smaller (concave) that the other (convex). Lumbar curves also have a convex side and a concave side.</p><p>Bonus round: If a spine has both a thoracic <em>and</em> and lumbar curve, the concave/convex ribs are the <em>opposite</em> of the concavity/convexity in the lumbar.</p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://thescoliosisblog.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://thescoliosisblog.substack.com/subscribe?"><span>Subscribe now</span></a></p><p><strong>Question 4: How can I adjust my breathing to support my spine?</strong></p><p>Don&#8217;t try to learn this on your own. Every single body is different, and every single scoliosis is unique!</p><p>Scoliosis affects your breathing - just think of that one concave rib cage! Add on years of bracing, and your breathing can <em>really</em> be impacted.</p><p>The good news? You can retrain your breath. (Bodies are wild, but brains are wild too!!) Find a scoliosis-specific physiotherapist - locally on online, as long as it&#8217;s personalized for <em>you</em>). They will take into account your curve pattern, rotation, and needs to coach you into a new style of breathing.</p><p>Might sound like madness, but it&#8217;s not! The bonus? With the right education and targeted exercises, specialized breathing can help <em>de-rotate</em> your spine, and help expand that smaller ribcage. Wins, all-around!</p><p><strong>Question 5: Where are my fusion levels?</strong></p><p>This won&#8217;t apply to freshly diagnosed Scoli&#8217;s. But if you have had a spinal fusion surgery (or the new VBT surgery) you will want to know your fusion levels.</p><p>&#8220;What are fusion levels!?&#8221; I&#8217;m so glad you asked.</p><p>When scoliosis curves hit a certain size, the recommended path forward is often spinal fusion surgery (we&#8217;ll cover that in another post, don&#8217;t worry). The short of it is: a certain segment of the spine is &#8220;fused&#8221; together. You may hear Fusioneers (a term <em>Tangled</em> coined for all people walking around with metal rods in their spines) say things like &#8220;I&#8217;m T2-L1&#8221;, or &#8220;I&#8217;m T1-T8&#8221;. They&#8217;re not sharing strange zip codes&#8230; they&#8217;re saying which vertebrae in their spines are forever and always merged together.</p><p>If you have had a fusion surgery, you should know which levels you are fused at. Thjis will help inform everything from your workout routines, to figuring out why certain daily actions seem more frustrating than they should be, to informating any new PT, coach, or massage therapist so they know what they&#8217;re working with and how best to support you.</p><p>If your medical records are unavailable or you have forgotten, a specialist can review your X-rays and confirm your fusion level.</p><p><strong>Want to learn even more answers to critical scoliosis questions throughout your journey?</strong> Check out the <strong>Shop</strong> page to get your full behind-the-scenes scoliosis guide, <em>Tangled in the Curves: Real Life with Idiopathic Scoliosis. </em>Turn Diagnosis into Direction<em>.</em></p><div class="callout-block" data-callout="true"><p style="text-align: center;"><em><a href="http://5 Scoliosis Questions You Need to Get Answers to ASAP">Your Scoliosis Lifeline is right here</a></em></p></div><div><hr></div><p><code>Note: This blog is based on the author&#8217;s experience and opinion only, without any formal medical training. In no way should this blog replace professional medical advice.</code></p>]]></content:encoded></item><item><title><![CDATA[Scoliosis 101]]></title><description><![CDATA[The Very Least You Should Know About Scoliosis]]></description><link>https://thescoliosisblog.substack.com/p/scoliosis-101</link><guid isPermaLink="false">https://thescoliosisblog.substack.com/p/scoliosis-101</guid><dc:creator><![CDATA[Caroline Bell]]></dc:creator><pubDate>Wed, 03 Jun 2026 23:08:37 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!U-vg!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F8e829887-ea89-4596-a0c1-87cbf31c5105_1080x1080.png" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>What comes to mind when you hear the word &#8220;<strong>scoliosis</strong>&#8221;?</p><p>Give it a moment.</p><p>Depending on the environment, influences, and social settings you grew up in, it&#8217;s likely one of two things come to mind:</p><blockquote><p>Option A: weak, deformed people; often used as a social short-hand to mock in media.</p><p>Option B: nothing at all.</p></blockquote><p>Why could that be? Well, quite simply, access to basic scoliosis information has been lacking worldwide for decades. So it&#8217;s not your fault if you know nothing about it. But it is your responsibility to change that.</p><p>In keeping with &#8216;blog etiquette&#8217;, let&#8217;s keep this short and cute: Scoliosis is a musculoskeletal effect on the body where the spine bends, curves, and rotates on itself, pulling all other body parts with it. Most often it presents in girls during adolescence (but also presents in boys, infants, children, and can change throughout life). Scoliosis has occurred around the globe for centuries. It does not care who you are, where you&#8217;re from, what your wealth or education is. There is ongoing research about its origins and &#8216;triggers&#8217; to cause the spinal curvatures, which keeps pointing back to some genetic links (among other intriguing potential sources!).</p><p>A big &#8220;miss&#8221; in the average Scoliosis definition is that is affects the spine in all three dimensions - usually the textbooks will only say it&#8217;s a &#8220;side-to-side curve&#8221;. I suspect that is because most of the accompanying x-rays show the spine from the front or back, so you see only those curves (one curve referred to as a &#8220;C-curve&#8221;; two curves as an &#8220;S-curve&#8221;). However those images and that definition leave out two other dimensions that are so key to understanding the complexity of scoliosis and impact on the individual: the spine also <em>rotates</em> (kind of like a spiral staircase) and bends (forward and backward). Makes it sound even more fun, doesn&#8217;t it?</p><p>Scoliosis is not fun. It does not make the individual weaker. It is not something to mock. It is not &#8216;just&#8217; a side-to-side curve. It is a medical condition that can become serious, and anybody facing scoliosis is in fact a superhero that overcomes more challenges daily courtesy of their own spine than you may ever face, yourself.</p><h5>Check-in: What comes to mind when you hear the word &#8220;<strong>scoliosis&#8221; </strong>now?</h5><p>Hopefully a smidge more knowledge and empathy.</p><p>There are three main options for treating scoliosis (the first which many folks consider a non-option):</p><ol><li><p><strong>Wait-and-see</strong>: AKA &#8220;Let&#8217;s see if the curves worsen and then we&#8217;ll do something about it.&#8221;</p></li><li><p><strong>Bracing</strong>: A custom orthotic back brace is made for the individual to course-correct the young curve while it&#8217;s still flexible and growing. This deserves a whole other post on its own&#8230; Accompanying PSSE (Physiotherapy Scoliosis-Specific Exercises) while bracing have shown great results in research studies.</p></li><li><p><strong>Surgery</strong>: When the curve surpasses a certain degree of severity, surgery becomes the recommended path forward. The &#8216;gold standard&#8217; scoliosis surgery is called &#8220;Spinal Fusion&#8221; where metal rods and screws and put into the vertebrae to straighten the spine and prevent continued curving. A newer type of surgery called VBT (&#8220;Vertebral Body Tethering&#8221;) uses a more flexible cord instead. <strong>*</strong>These surgeries <strong>do not cure</strong> scoliosis; you still have it and it&#8217;s asymmetrical forces. But it prevents further curving.</p></li></ol><h5>Let&#8217;s do another quick check-in: Have you learned some brand-new information here today?</h5><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://thescoliosisblog.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="https://thescoliosisblog.substack.com/subscribe?"><span>Subscribe now</span></a></p><p>Good! I&#8217;m so glad you&#8217;re here and intrigued in learning more.</p><p>The very best way to tackle scoliosis? <strong>Early screening. </strong>Early detection in children is key - the sooner you spot an uneven hip, rib, or shoulder, the sooner you take them into the doctor&#8217;s office for a 30-second &#8220;Adam&#8217;s Forward Bend Test&#8221; to look for spinal asymmetries, the sooner (if scoliosis is suspected at this point) you get an X-Ray to confirm, the sooner you can course correct that curve with PSSE and bracing while the spine still has a lot of growth ahead of it to use to its advantage! Yay!</p><p>My favorite analogy for this all is the garden tomato plant. It starts off small, grows up a bit, and next thing you know it&#8217;s leaning over to one side. Time to add in the metal tomato hoops around it to support it upright, so we have a tall strong tomato plant!</p><h5><strong>Final recap:</strong></h5><p>Scoliosis is three-dimensional, most often (but not exclusively) presents in adolescent girls, is a challenging health condition, and ideally should be identified early.</p><p>Now you know. &#128154;</p><div class="callout-block" data-callout="true"><p>PS: The official color of scoliosis is green. Its awareness month is June. The quintessential behind-the-scenes book explaining scoliosis is <em>Tangled in the Curves: Real Life with Idiopathic Scoliosis. Get your copy today to turn Diagnosis into Direction. </em>&#128154;</p></div><div><hr></div><p><code>Note: This blog is based on the author&#8217;s experience and opinion only, without any formal medical training. In no way should this blog replace professional medical advice.</code></p>]]></content:encoded></item></channel></rss>